This is who we are

These are our BLENREP stories

Learn about real people living with relapsed or refractory multiple myeloma and their experience with BLENREP. Click on a photo to meet them.

Headshot of Kathy from Patient Stories

Kathy

59 y/o mother who enjoys traveling. On BLENREP since November 2020

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Cynthia

65 y/o photographer and mother of 7. On BLENREP since August 2020

Kathy’s Story

View Transcript

VO AND SUPER:
BLENREP
belantamab
mafodotin-blmf
for injection 100 mg

WHAT IS BLENREP?
BLENREP is a prescription medicine used to treat adults with multiple myeloma who have received at least 4 prior medicines to treat multiple myeloma, and their cancer has come back or did not respond to prior treatment. It is not known if BLENREP is safe and effective in children.

BLENREP is approved based on patient response rate. Studies are ongoing to confirm the clinical benefit of BLENREP for this use.

IMPORTANT SAFETY INFORMATION

What is the most important information I should know about BLENREP?
Before you receive BLENREP, you must read and agree to all of the instructions in the BLENREP Risk Evaluation and Mitigation Strategy, or REMS. Before prescribing BLENREP, your healthcare provider will explain the BLENREP REMS to you and have you sign the Patient Enrollment Form.

BLENREP can cause serious side effects, including:

Eye problems. Eye problems are common with BLENREP. BLENREP can cause changes to the surface of your eye that can lead to dry eyes, blurred vision, worsening vision, severe vision loss, and corneal ulcer. Tell your healthcare provider if you have any vision changes or eye problems during treatment with BLENREP.

SUPER: Please see IMPORTANT SAFETY INFORMATION continued at the end of this video and full Prescribing Information, including BOXED WARNING and Medication Guide.

VO: My name is Kathy. I’m a wife, mother, world traveler, and I’ve lived with multiple myeloma for the last 20 years.
SUPER: Kathy

VO: I didn’t stand idly by, doing nothing. I chose to be a pioneer in my journey with this disease and find a path forward.
SUPER: Be a pioneer in this disease… find a path forward

VO: I’ve been on more than 9 treatment regimens for multiple myeloma since I was diagnosed.
SUPER: Struggling with multiple relapses

VO: Each worked for a time, but in early 2020, my cancer stopped responding to the treatment.

VO: As I was getting weaker, my myeloma was getting stronger.

VO: In fact, I needed my husband to carry me up and down my 3-story townhouse.

VO: My husband and I did what we always did and started searching to find other options—

VO: researching multiple myeloma-based professional sites—
SUPER: Searching for options that provide hope

VO: patient advocacy groups, pharma company sites, social media, and even chat rooms.

VO: This led us to finding BLENREP, a potentially promising agent, so we went straight to my hematologist with our discovery.
SUPER: Finding BLENREP

VO: We brought it to their attention that a BCMA-inhibitor targeting drug… I had not tried.
SUPER: BCMA=B-cell maturation antigen.

VO: Time was of the essence, so I immediately asked about BLENREP. It’s important to be an advocate for your health and be proactive.

VO: My care team didn’t have experience with it, but after evaluating and discussing it with my doctor, and working out logistics, I was well on my way to getting it.

VO: My care team worked hard for me. My hematologist, nurse, and eye doctor are all under the same system, so my nurse was able to coordinate all my appointments.

VO: We talked about it in October, I got enrolled in BLENREP REMS, and got my first treatment in early November.

VO: Don’t give up, get that second opinion, be proactive in your care and—

VO: knowledge… you need to find out what kind of myeloma you have, and what kind of treatment options are available.

VO: You have to think of the long game with multiple myeloma.

VO: The disease is different for each person and each person responds differently, but you must be proactive.

VO: Just to keep fighting, and not to give up.

VO: I found out I might have vision problems with treatment through my own research—

VO: my hematologist gave me more detailed information and told me I’d need an eye exam prior to each infusion.

VO: Since starting treatment, I have been using eye drops multiple times a day as my eye doctor instructed me to do.
SUPER: Managing ocular side effects

VO: I have experienced dry eyes and some blurry vision, and my doctor has adjusted my treatment dose to manage the side effects.

VO: My treatment was a 30-minute infusion, every 3 weeks. And after 2 doses of BLENREP, I saw a response. I felt my body was in a better place.

SUPER: Responding to BLENREP
SUPER: Treatment results may vary.

VO: After two treatments of BLENREP, when I had the PET scan done, I was called pretty much immediately when the results were in by my doctor.

VO: I still wanted to have that report in my hands, and my husband finally showed up in our portal at like 4 in the morning.

VO: And so, he printed it and surprised me with it under our Christmas tree.

VO: And it was the best gift.

VO: I would tell other people in similar situations to stay strong and not give up.

VO: I feel blessed to have gotten BLENREP—it’s working for me and helping me stay focused on the positive.
SUPER: Staying positive during treatment
SUPER: Treatment results may vary.

VO: Never give up, because BLENREP could make a difference.
SUPER: Ask your healthcare provider if BLENREP is an appropriate option for you.

VO AND SUPER:
IMPORTANT SAFETY INFORMATION

  • Your healthcare provider will send you to an eye specialist to check your eyes before you start treatment with BLENREP, prior to each dose of BLENREP, and for worsening symptoms of eye problems.
  • Even if your vision seems fine, it is important that you get your eyes checked during treatment with BLENREP because some changes can happen without symptoms and may only be seen on an eye exam.
  • You should use preservative-free lubricant eye drops at least 4 times per day during treatment with BLENREP as instructed by your healthcare provider.
  • You should use caution when driving or operating machinery as BLENREP may affect your vision.
  • Avoid wearing contact lenses during treatment with BLENREP unless directed by your eye specialist.

Decrease in platelets (thrombocytopenia) is common with BLENREP, and can also be serious. Platelets are a type of blood cell that help your blood to clot. Your healthcare provider will check your blood cell counts before you start treatment with BLENREP and during treatment. Tell your healthcare provider if you have bleeding or bruising during treatment with BLENREP.

Infusion reactions are common with BLENREP, and can also be serious. Tell your healthcare provider or nurse right away if you get any of the following signs or symptoms of an infusion reaction while receiving BLENREP:

  • chills or shaking
  • redness of your face (flushing)
  • itching or rash
  • shortness of breath, cough, or wheezing
  • swelling of your lips, tongue, throat, or face
  • dizziness
  • feel like passing out
  • tiredness
  • fever
  • feel like your heart is racing (palpitations)

The most common side effects of BLENREP include vision or eye changes such as findings on eye exam (keratopathy), decreased vision or blurred vision, nausea, low blood cell counts, fever, infusion-related reactions, tiredness, and changes in kidney or liver function blood tests.

Before receiving BLENREP, tell your healthcare provider about all of your medical conditions, including if you:

  • have a history of vision or eye problems.
  • have bleeding problems or a history of bleeding problems.
  • are pregnant or plan to become pregnant. BLENREP can harm your unborn baby. Females who are able to become pregnant: Your healthcare provider may do a pregnancy test before you start treatment with BLENREP. You should use effective birth control during treatment with BLENREP and for 4 months after the last dose. Talk to your healthcare provider about birth control methods you can use during this time. Tell your healthcare provider if you become pregnant or think you may be pregnant during treatment with BLENREP. Males with female partners who are able to become pregnant should use effective birth control during treatment with BLENREP and for 6 months after the last dose.
  • are breastfeeding or plan to breastfeed. It is not known if BLENREP passes into your breast milk. Do not breastfeed during treatment with BLENREP and for 3 months after the last dose.
  • BLENREP may affect fertility in males and females. Talk to your healthcare provider if this is a concern for you.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

These are not all the possible side effects of BLENREP.

Please see Prescribing Information, including BOXED WARNING and Medication Guide.

VO AND SUPER:
Ask your healthcare provider if BLENREP is an appropriate option for you.
SUPER: Trademarks are owned by or licensed to the GSK group of companies.

©2021 GSK or licensor.
BLMVID210018 November 2021
Produced in USA.

 BLENREP has worked for me. It is helping me stay positive and stay ahead of the disease. 

Who am I?

  • A wife, mother, and a substitute teacher
  • 59 years old, diagnosed with multiple myeloma in 2001
  • More than 9 previous treatment regimens for multiple myeloma

What is my experience with BLENREP?

  • Began treatment with BLENREP in 2020 and had a good response
  • Have experienced some side effects, including joint pain and blurred vision. Dry eye is managed with eye drops during the day
  • Feel supported by a team of healthcare providers, including a nurse practitioner, eye care professional, and oncologist

 Everyone’s disease is different and everyone responds differently. I try to be as proactive as I can, and BLENREP is part of that. 

Cynthia’s Story

 Nobody is guaranteed a tomorrow, but I try to remain as positive as I can. I have a disease that is treatable but not curable—yet.

Who am I?

  • A commercial photographer
  • 65 years old, diagnosed with multiple myeloma in 2015

What is my experience with BLENREP?

  • Started BLENREP in 2020. Lab values have shown a positive response to treatment
  • Blurred vision is treated with eye drops every 4 hours
  • A nurse practitioner has been an important member of the support team over the past few years

DO YOU WANT TO TELL YOUR BLENREP STORY?

Call 1-877-268-0443 to learn more about the BLENREP patient ambassador program.